Disease awareness in hemophilia: impact on therapeutic adherence and clinical outcomes
- 2026, Volume 3 - Number 1
- Published: February 27, 2026
Disease awareness in hemophilia: impact on therapeutic adherence and clinical outcomes
Mariela V. Pasquero 1, Luis C. Cinara 2, Agustina M. Petracco 1, Daniel A. Magliaro 3, Mauro R. Davoli 3
1 Fundación de la Hemofilia de Santa Fe, Rosario, Argentina; 2 Facultad de Ciencias Médicas, Universidad Nacional de Rosario, Rosario, Argentina; 3 Fundación de la Hemofilia de Santa Fe; Facultad de Ciencias Médicas, Universidad Nacional de Rosario. Rosario, Argentina
Mariela V. Pasquero, Luis C. Cinara, Agustina M. Petracco, Daniel A. Magliaro, Mauro R. Davoli
La información completa de afiliaciones y autor de correspondencia está disponible en la versión original en PDF.
*Correspondence: Mariela V. Pasquero. Email: hemofilialrosario@hotmail.com
Summary
Background: Hemophilia is an inherited bleeding disorder that requires multidisciplinary management to reduce long-term complications. Disease awareness may influence treatment adherence and clinical outcomes. Objective: To analyze the relationship between disease awareness and adherence to prophylactic therapy in patients with hemophilia. Material and methods: A review of assessment tools and strategies addressing psychosocial, educational, and economic barriers to adherence was conducted. Results: Higher disease awareness was associated with improved adherence, reduced bleeding episodes, and better preservation of joint function. Conclusions: Disease awareness is a key determinant of adherence in patients with hemophilia. Interventions that enhance patient self-management may improve long-term health outcomes.
Keywords: Hemophilia. Health knowledge. Treatment adherence.
